Golisano Intellectual and Developmental Disabilities Institute

The Golisano Intellectual & Developmental (IDD) Institute brings together a multidisciplinary team dedicated to innovation and bettering the lives of people with an intellectual and developmental disability (IDD) and their families. The Institute will expand into a new state-of-the-art space bringing together the leading programs in University of Rochester’s IDD patient care, education, community outreach, and caregiver support that serve approximately 140,000 families in the region. A second location of the Complex Care Center will support the growing population of adults living with an IDD and it will become a primary training site for health care providers specializing in this area of care.

Eastman Institute of Oral Health (EIOH) will expand its Specialty Clinic and telemedicine services, allowing it to serve more IDD patients. Developmental and Behavioral Pediatrics as well as the Leadership Education in Neurodevelopment Disabilities (LEND) and University Center for Excellence in Developmental Disabilities (UCEDD) programs will expand their integrated care and developmental disabilities training functions, and collaborate across the Institute to ensure advocacy, accessibility, and education are relevant to the needs of the IDD community. The Department of Neurology will build a cerebral palsy clinic and movement lab, the first of its kind in the region. The Intellectual and Developmental Disabilities Research Center (IDDRC) will advance diagnostics and provide genetic testing to leverage our understanding of IDDs. The University is one of only eight institutions in the U.S. with the trifecta of federal awards that support the work of the LEND, UCEDD, and IDDRC.